Give a Brighter Future to Families Impacted by DeSanto-Shinawi Syndrome

Families navigating the challenges of DESSH deserve access to the right resources and support. At The DESSH Foundation, we are dedicated to providing the tools and connections these families need to thrive.

Give a Brighter Future to Families Impacted by DeSanto-Shinawi Syndrome image

DOUBLE your impact! Your donation will be matched dollar for dollar up to $20,000!

Meet Patrick, a sweet 7-year-old with an infectious smile and an energy that lights up any room. He’s a joy to his family and community, but his journey with DeSanto-Shinawi Syndrome (DESSH) is filled with challenges. Diagnosed at 23 months old, Patrick has faced developmental delays, difficulty communicating, and ongoing health issues that require specialized care. For his family, each day is a balance of managing therapies, advocating for his needs, and celebrating every precious milestone.

For families like Patrick’s, navigating a rare diagnosis can feel overwhelming and isolating. With little information available and few specialists familiar with the condition, parents are left searching for answers and wondering if there’s a path forward that includes hope, support, and understanding. The DESSH Foundation exists to make that journey brighter and easier for every family touched by this rare disorder.

Your generosity makes it possible for us to:

  • Provide essential resources that empower families to better understand and manage DESSH.
  • Connect families with medical specialists and therapists who can provide comprehensive care for their children.
  • Create a strong community of support, where families can share experiences, build relationships, and find the encouragement they need.
  • Fund research efforts to deepen our understanding of DESSH and pave the way for more effective treatments.

The DESSH Foundation’s mission is to ensure that no family faces DESSH alone. With your help, we can continue to give families like Lily’s access to the support, resources, and community they need to see a brighter future ahead.

Please consider making a gift today. Your donation gives families impacted by DESSH a lifeline of hope and possibility. Together, we can make sure that each child’s journey is filled with love, support, and a brighter tomorrow.

Give a forever brighter future. Give hope. Give today.